I want to tell you a true story about my diabetes and it is also about lions and sheep.
Recently I rolled my ankle while exercising and as a result, I had a sore foot. I was hobbling around at home and my daughter noticed. She didn’t say anything but a few days later my wife relayed a conversation that she had with another mother from my daughter’s school about my diabetes. That mother was a nurse.
You see my daughter had been picked up from school by the nurse with her daughter. During the car ride, my daughter had said that I had diabetes. My daughter was really worried that my foot was going to be amputated because that is what happens to people with diabetes. The mother, very concerned, proceeded to tell my wife about possible treatments for diabetic feet.
What Would you Say About Diabetes Complications?
Do you have diabetes? What would you say to your daughter or loved one? I’ll tell you what I told her. I hope it is useful for you if you are in a similar situation.
“Firstly,”, as I explained to my daughter. “you need to be aware that retinopathy is diabetic blindness, neuropathy is diabetic nerve disease (a precursor to diabetic amputation) and nephropathy is diabetic kidney disease that usually leads to dialysis.”
“Now a measure of your diabetes severity is called HbA1c or A1c for short. Your A1c is a measure of the sugar in your blood cells. This is useful because your blood cells are renewed every three months so you kind of get an average of the sugar level in your blood over that time.”
A Dirty Little Secret
“Below 5.8% you are normal, and above that, you have pre-diabetes until 6.5% when you have full diabetes. Diabetes organisations tell us to aim for an A1c of between 6.5% to 7.0% but darling there is a dirty little secret there. You see eating carbohydrates (as they recommend) it is hard to get that low. If fact many people do not get below 7.0%!”
“Sweetie, have a look at this graph that maps those complications against HbA1c in people with diabetes.”
“You can see that someone with an A1c of 7.0% has almost double the risk of all those complications as someone at 6.0%. Someone wth an A1c of 9.0% has about five times the risk of going blind!”
My Diabetes Results
“But you said that most people struggle to hit 7.0% where they double their risk” she said: “Daddy, what is your A1c?”
I showed her my test results. “Well, when I was taking 3 different diabetes medications my A1c was 9.0%, but when I restricted carbohydrates (LCHF diet), my A1c dropped to 6.0% while taking no medications. That took three months. Now my A1c is 5.8% and my risk is essentially the same as someone without diabetes.”
The nice ending to this story is that now my daughter’s mind is at ease AND she thinks her daddy is a ‘lion’ for beating diabetes complications.
But I am not an animal superhero. This kind of result has been repeated by many people. It is a result based on science and results like mine must, therefore, be repeated by others.
So if you have had this awkward conversation with your son, your daughter, your wife, husband, lover or another dear relative or friend, consider backing up your assurances that you will be all right by taking control of your health. Restrict your dietary carbohydrates.
Maybe you have denial and uncontrolled diabetes and haven’t told anyone close to you. If you have not had this conversation, then still take control of your diabetes and nix your chances of complications so you can have a positive experience like I did. Better than having instead to try and explain your complications to close ones in the hospital.
Be a Lion, not a Sheep
Dietetic and diabetes associations do not want you to know this information. They have tried to silence the people that are telling you and expect you to use their services like helpless sheep. Thank God they cannot stop me telling my daughter the truth nor telling you this true story.
The Association of Dietitians from South Africa (ADSA) complained against Prof. Tim Noakes and continue to ignore the evidence that he presented in pursuing his comprehensive acquittal. It showed that the LCHF diet was beneficial to health.
Dietitians complained against Orthopaedic Surgeon Dr Gary Fettke to silence him against giving this advice to patients. How despicable to ask him to keep quiet when he can prevent amputation by diet.
The Dietitians Association of Australia (DAA) deregistered dietitian Jennifer Elliott after another dietitian complained a patient was confused by her low carb advice and they reinforced their advice that results in higher risk of diabetic complications.
The DAA complained against Carynn Zinn, another low carb dietitian in New Zealand where they had no authority nor any reasonable business to do so.
Why is this being Suppressed?
Low carb is actually quite simple and its safe. On one level its just “give me a plate of healthy meat and vegetables for dinner (and hold the potatoes)” but the organisations act like you will eat rat poison.
I do not believe in conspiracy theories- but business is business. Businesses love sheep that just keep paying money for their products. As they are profitable, they have money for marketing to keep everyone buying. Marketing can pay for favourable research studies and it can sponsor dietitian’s conferences. It is worth spending marketing money to keep revenue streams going and growing. That is completely normal.
LCHF means you eat a lot less processed food (like breakfast cereals) from the food industries that sponsors dietetic associations. It appears dietetics associations are happy to ignore science and promote bad and unscientific advice from their members because it keeps you going back with a chronic condition or when their advice fails and you regain weight or worsen.
Consider too that the amount of diabetes medicine you need is almost proportional to the carbohydrates you eat. I ate next to no carbohydrates and went to no medications. You will need less medication if you restrict your carbs- naturally if you do plan to reduce medications then talk to your doctor first. Any reduction benefits your health and wallet but is not good for pharmaceutical companies.
Be a lion, not a sheep, and if you are still not sure I leave you with part of the testimony by Tim Noakes that these organisations do not want you to see. If this does not convince you there are 80 more short videos that the dietitians pretend to ignore that you can watch.
Whether you have type one diabetes and follow Dr Bernstein’s low carb diet or type two diabetes, if you do take this journey I know you will almost certainly have similar results. Do tell me and pay it forward by telling others, but do me a favour and don’t tell my daughter.
You see it’s nice for a daddy to be a lion to his little girl for more than just one day.
The official statistics I have quoted on indigenous health related to diabesity are appalling. Anecdotally too, there are horrific case examples.
We looked at the nonsensical state of innovation in diabetes and diet. In a situation analogous to the slowness to accept the cure for scurvy, we have seen forces that appear to be holding back effective dietary solutions for indigenous health. Those solutions, based on a traditional diet, were demonstrated back in the 1980s.
The situation looks bleak, but the low-carbohydrate movement has always focussed on grassroots solutions. That is a good strategy. You see the stakeholders who have the most to gain are people whose health is improved. The problem with low carb is that almost everyone else has something to lose. That is particularly the case for the food and pharmaceutical industries who benefit from the status quo. If you are in government and reading this, I have a message. It is incredibly short-sighted not to openly understand whether there are the disempowered stakeholders you should put first. This is an ancient problem for bureaucracy. You need to be counter-intuitive and anthropological. But we are getting deep. The efficient management of innovation by the government is a topic for another post.
Be Like Daphnis
The good news is that change is happening at the grassroots. I came across this Internet meme about Daphnis. It is one of the smaller moons of Saturn and the small ripples it makes in the rings of its much larger neighbour, and it seems appropriate to represent the change we can individually make. I think it is also very apt for this post.
I want to focus on the efforts of one individual in New Zealand who is making a difference. Joseph Finau commented on one of my posts, and I think it is worth considering his recent journey.
Joseph is a single dad from Auckland, New Zealand who has a remarkable story of battling diabesity and weathering personal tragedy. Losing 100KG (220 lb) is something entirely amazing but moving beyond that I want to celebrate his success in innovating within his community.
According to the 2013 NZ census, about 60,000 people of Tongan descent live in New Zealand. Most live in the North Island in and around Auckland. Like many Pacific peoples, and in common with the Aboriginal and Torres Strait Islanders, Tongans have suffered from diabesity in the transition from a hunter-gatherer diet and lifestyle to a Western diet and lifestyle. For their diet, diabesity is commonly blamed on the eating of turkey tails, lamb flaps and corned beef. Joseph has a different point of view- one born from the perspective of his success.
I believe that going back to the way our ancestors ate is the only way to cure ourselves from this western disease (Diabetes). for the last 3 years I’ve been eating Island foods mixed in with Western foods. example: Taro leaves & coconut cream & corned beef. Tongans loves corned beef but told it’s no good. the thing is? CORNBEEF has NO CARBOHYDRATES or SUGAR which means it’s low carb.
Joseph has adapted the Western foods Tongan’s love with some traditional food (less the starchy staples) to make Tongan and Pacific island dishes the low-carb way. That is also what the Nigerians have done and it is also what Western low-carbers have done. Corned beef cooked with cabbage in coconut cream and raw fish (AKA ceviche or kokoda) are but two dishes. Joseph has addressed one of the complaints, that low carb is too expensive, by also thinking about the economics for large families who need to be fed on a budget.
Is Low Carb Too Expensive?
The economics of low carb are an interesting topic perhaps for a future post. Let us just say here that the current criticism that low carb is expensive has some validity. It is also true that economies of scale have not yet kicked into the food supply. For sure there will be winners and losers. We only need to look at what has happened to the cost of solar power as economies of scale kicked in. A technology that was always a great idea but was uneconomic is now economic.
However, for the moment Joseph does have solutions that work for him and his community on a budget. As he shows, it doesn’t have to be about grass fed steak, tinned corned beef (which Tongans already eat) is fine.
LOW CARBZ 4 STARTERS & BIG FAMILIES. (Food is medicine)
Joseph has a Facebook group to reach out to people in his community and around the world. He runs cooking workshops, and his group has a procession of recipes from the one thousand or so members.
Now one thousand members may be small compared to the 340,000 now in the Ketogenic Lifestyle (Nigerian) group, but with 190,000,000 Nigerians and only 170,000 Tongans and Kiwi Tongans, it is actually quite significant.
What are the lessons for Australia?
Many people have long regarded Tongan diabesity as an intractable problem. Joseph is proving them wrong.
It seems that low-carb can be adapted to almost any cuisine and budget. By analysis of the Nyungar diet and by looking at the work of Prof. O’Dea and (most importantly) consulting with the communities, we should be able to adapt Western food to be closer to the macronutrients that Aboriginal and Torres Strait Islanders became metabolically used to for 30,000 to 50,000 years. It should be possible to make it affordable, available, and it should be more culturally appropriate than the food choices available today.
I am not saying it would be easy. I hesitate to suggest solutions for a people who have had plenty of ‘advice’ from my kind in the past. Social issues are always complex. Any solution must come from their grassroots. We need some champions like Joseph to lead the way to say eating needs to be different. Staple ‘modern’ bush tucker needs to be redefined and delineated from a preference for McDonalds or KFC. Awareness needs to be built about traditional diet and the reasons that fats and sugars are sought after, but need not be consumed in excess. That needs to be internalised. If it is hard for urban dwellers to avoid fast food, then the other side of the coin is poor access to healthy food in remote communities.
In the end, it will be a personal choice. However, if people and communities don’t have knowledge of this option, how can they choose a traditionally oriented diet for optimum health?
‘Blind Freddy’ can see that the existing approach is not working. It doesn’t work for the indigenous people of the world, and it isn’t working for us. We need different thinking.
Is a ‘Sugar Tax’ a Solution?
A sugar tax might provide revenue for some change while food supply economics normalise. If we are to have a sugar tax, why not apply it to tax the majority of unhealthy eating Australians to subsidise the food supply of those who may struggle to afford healthy food because of their socioeconomic or geographic disadvantage? Focus the funds on innovation to change ingrained food habits. This would be likely to normalise when the economics of the food supply and demand and supply settle down anyway.
No-one is arguing any more against sugar being unhealthy (apart from the food lobby). Before taxing other ‘unhealthy’ foods, the science needs to be settled.
It is in the nature of researchers to always call for more research funding. Frankly, when you see misguided research that appears to be being undertaken into diabesity, there are much better uses for the money. I am neither anti-research nor anti-academic, but funding should be judicious and focussed on settling the science for starters.
What are the lessons for NZ?
My Anzac cousins, you chose not to federate with us, and I get that. The last thing you need is some Aussie blogger telling you what to do! Joseph is doing fine, and you have other fantastic people in the low-carb community, but I have to question:
Why on Earth do your bureaucrats and food policy people follow Australia when we think that our dietary guidelines and institutions are dumb and broken?
It perhaps says a lot about the power of trans-Tasman economics over trans-Tasman rivalry, and there is probably a PhD thesis somewhere in that.
I think it is time to assert some of that famous independent Kiwi thinking. Otherwise, pretty soon the change will be over in Australia, and we will claim that Prof. Grant (Schofield) was really an Aussie researcher- just like Split Enz was an Aussie rock band.
Keep Going Joseph
My message to Joseph is simple. You may not have 340,000 group members on facebook but you are like Daphnis, and you are making waves at the grass-roots and leading by example.
You are not half the man you used to be, but twice the man most of us will ever be.
“Kai mate”, my Kiwi Tongan friend, and may that eating be low carb for a long and healthy life.
In our last post, we saw that Paleo dietary solutions were researched and shown useful for diabetes in Aboriginals in the 1980s. Diabetes and other chronic disease were obviously caused by a western diet and lifestyle, and yet the recommendation to Aboriginal and Torres Strait Islanders was to eat the very same Western diet that was making those chronic diseases prevalent in Western people like me.
Here are the healthy eating charts for Aboriginal and Torres Strait Islanders and the one for all Australians.
Prof. O’Dea’s work showed some forty years ago that we are metabolically different yet these nutrition charts treat us as metabolically equivalent. Prof. O’Dea also revealed that the traditional diet reversed chronic diseases for the First Australians however but for token changes, neither chart reflects a traditional diet. A traditional diet would be around two-thirds meat with few carbohydrates and seasonal fats. It would not have taken too much effort to look at the macro-nutrients of the Nyungar diet or Prof O’Dea’s data and devise a better-suited eating chart. Instead, I am sorry to say; this is like someone drew in a token lizard and kangaroo and substituted and moved some other pictures around. The emergency of diabetes and chronic disease among Aboriginal and Torres Strait Islanders deserves better than this. In fact, as Prof. O’Dea alluded to, we all might be better eating from the same chart reflecting an Australian ‘Paleo’ diet.
A Deeper Mess
When we examine what people diagnosed with diabetes should eat, the recommendation is that they still eat the same as in these charts. All Australians with diabetes should ask themselves something at this point.
If we have used those dietary guidelines as a nation and we have ended up getting fatter and sicker, why will continuing with that advice solve the situation?
The question is profound, but the answer is obvious. Of course, it won’t. Like this country’s obesity and diabetes statistics, your personal statistics will continue to get worse trying to follow that advice. Australia is chronically sick as a nation trying to eat that way, and you are also chronically sick trying to eat that way. Aboriginal and Torres Strait Islanders are even more unwell, and they point the way for all of us.
I must emphasize the word “trying”. You see some people try to explain away the problem by saying that people do not follow the guidelines. They imply that their technical perfection is the only effort needed as if their job was done. Population health demands actual outcomes not theoretically perfect guidelines that people cannot or will not follow.
Where is Innovation?
What has held Prof. O’Dea’s revelations of forty years from a possible practical application? It would be scandalous if this was deliberate as it really would by tantamount to a systematised dietary genocide of the First Australians. We can probably rule that conspiracy theory out though as it is killing us all. How could we arrive at this point where we are all getting sicker trying to follow this advice? This is not a problem of nutrition, and it is not an issue of the science. It is a problem of innovation.
We have already seen in past posts that dietetic organisations like the DAA appear preoccupied with things other than our health (including whole-grain breakfast cereals) and what seems to be dietary dogma. This contributes to the innovation problem.
What about the diabetes research community? While the problems are systemic, innovation can sometimes be held back by an individual at the top who holds views of the status quo. Usually, it is that the existing paradigm and way of thinking is a source of their power. Sometimes there are other reasons. It is instructive to look at the views of those who rule the roost on diabetes advice.
The Australian Diabetes Society
Prof. Sofianos Andrikopoulos is arguably the foremost Australian diabetes researcher being the current CEO and past president of the Australian Diabetes Society (ADS). The ADS vision is: “To be the leading society for research, medical practice and education in diabetes”. They work with Diabetes Australia and the Australian Diabetes Educators Association (among others) who are on the front line to deliver diabetes management in practice. The ADS lists ‘innovation’ as a value.
It takes a certain mindset for organisations and individuals to embrace innovation. In my analysis of companies, the innovative ones have CEO’s that can think differently and embrace with an open mind and build that capability in their organisation. Those organisations have the capability to think of the things that delight the ‘end user’ including things that even the end user never even thought of. They also have the understanding to look for user trends. Users often ‘hack’ a product to make it work better. When they see that ‘hack’ they pick up on that and research it thoroughly to find out why their product or service is being hacked for insight. They don’t discount anecdote or exclaim “N=1!” because that is frequently how invention starts.
Innovation is often mistaken for invention. These are different words with different meanings. Invention is discovery, while the act of innovation is the process of introducing something new. One need not invent to innovate and ego, expertise and the need to be seen as infallible are often the enemies of innovation.
Innovating to Solve Scurvy
I am reminded of the health innovation to use citrus in the British Navy to cure scurvy. There is ample literature on this subject and I don’t propose to redo that work. Here is one reasonable account. My summary:
In the 1700s, the British Navy was facing a battle with a chronic disease called scurvy. In some ‘battles’ it lost most sailors to scurvy than to the troublesome French with whom they were fighting. No matter what they seemed to try, the health of sailors degenerated until they died.
Historians attribute a big part of the delay to accept Lind’s work to the personal beliefs of the very eminent Sir John Pringle, who held a differing theory on the cure for scurvy.
It took Pringle’s retirement and death (in 1782) and the appointment of Gilbert Blane as the commissioner of the Sick and Hurt Board, for this simple treatment protocol to be agreed by the Admiralty. That was not until 1795.
What does this have to do with diet and diabetes?
We are facing an epic battle with diabetes as a chronic disease- just like scurvy.
Diabetes is seen to be a complex and multifactorial problem with diet being a major factor- just like scurvy.
O’Dea’s work in the 1980s showed that a Paleo diet, high protein but lower in carbohydrate and fat was a solution for the most sensitive people to this problem (Australian Aboriginals)- just like Lind.
Many of us who have effectively cured our diabetes with that kind of diet are like those lemon juice drinking ship’s surgeons. Some of us are indeed doctors.
So what are the ‘beliefs’ of Prof. Andrikopoulos about the paleo (low carbohydrate) diets and are they holding up acceptance? We can point to two major pieces of work.
Mice are not representative of people for dietary research (although they may make good models for endocrine research).
There are plenty of RCTs in humans that show the opposite effect to this study.
This was not a human Paleo diet anyway. Neither by type of food nor by macro composition.
It was not the ancestral (Paleo) diet for a mouse so no wonder it caused health issues.
Mouse Study Fallout
Many critics in the paleo and low-carb high fat (LCHF) community were annoyed by what they saw as a biased attempt to discredit their way of eating and some disparagingly tagged the professor with the nickname “Dr Mouse”.
Why would the lead author, a scientist of reputable standing in the Australian academe, have been so misled?
Cambridge scholar, Nathan Cofnas, wrote back to the journal the paper was published in to say (among other things):
Mice in the experimental condition were fed something loosely based on a version of the human Paleo diet, which for mice is not Paleo.
An academic peer from New Zealand, Prof. Grant Schofield, seemed annoyed when he wrote:
We think that the way Prof Andrikopoulos presented his results in the media was disgraceful. He can’t be unaware of the human research into LCHF for diabetes and the problems with mouse models. He could easily learn, if he wanted to, about relevant research into the Paleo diet too. Absolutely none of this research supports the claims that he’s making on the basis of his 9 mice.
His claims, despite being based on minimal evidence having very limited relevance. seem designed to disrupt the efforts of those of his colleagues who are using LCHF diets to benefit people suffering from obesity or diabetes.
He and three peers G Henderson, C Crofts, and S Thornley also wrote in their letter to the Journal of Nutrition and Diabetes:
The unfounded conclusions of Lamont et al., and the widespread publicity given to their criticisms of LCHF diets, amount to ‘an unjustifiable interference with a method that is working well’.
It is unclear how this research fits into a systematic endocrinal research program as may be seen in Prof. Andrikopoluos’ other work. Instead, this sudden foray into dietetic research appears to support assertions of interference and a disruptive agenda. I note that at the time that this research was being contemplated and undertaken, Chef Pete Evans and the Paleo diet was very topical. It is possible that Pete Evan’s popular message had somehow upset the Prof. Andrikopoulos and motivated this study to be undertaken. While I applaud academics who involve themselves in topics of controversy (we need more of it), I question the use of these research resources when diabetes is in crisis if that was the motivation. That is, unless the NHMRC is counting media articles instead of citations these days as a KPI.
The MJA Paleo Article
Prof. Andrikopoulos doubled down with a second foray into nutrition when he wrote a journal article for the Medical Journal of Australia that was also not supportive of Paleo diets (low carb) for diabetes in August 2016.
It was also reported widely in the medical media and it was also criticisedagain– although not as resoundingly as the mouse study. I think it should have been due more criticism.
In the Shadow of CSIRO
It is surprising to realise that when the journal article was written, the CSIRO had already done considerable work on its low carb diet with 93 participants for 24 weeks for diabetes and published in mid-2014 yet that is mentioned nowhere. With his profile in the ADS, that work must have been known to him. About six months after that ‘warning’ that went to doctors through the journal, the CSIRO has published a popular book on the subject on sale to the public. Imagine when patients begin talking about the CSIRO diet and their doctors lack information.
It is all the more surprising when you realise that the mouse study itself was undertaken in the shadow of the CSIRO work. While the diet composition was different (58% vs 80% fat for example) they are similar enough to question why the mouse trial was done at all.
Diabetes Research Leadership?
Prof. Andrikopoulos concluded in his mouse study:
The potential effect of popular weight loss diets needs to be carefully considered with the help of sound evidence before they are recommended for type 2 diabetes.
… and his journal letter:
…. clearly more randomised controlled studies with more patients and for a longer period of time are required to determine whether it has any beneficial effect over other dietary advice.
Prof. Andrikopoulos, as a diabetes research leader through the ADS should be and should have been the driving force to solve these questions. Leadership is not owned, it is given. Unless he has been very busy in the last months solving these important questions of potential dietary diabetes therapies, his leadership position looks diminished.
If indeed, it is as it seems (that these research questions have already been answered) then it would instead appear that his beliefs have been killing the innovation efforts of others.
Back to Our Historical Analogy
What I curiously discovered in writing this blog is that Prof. Andrikopoulos refers to one of Prof. O’Dea’s papers from the 1980s when writing his journal article. Was that reference by Prof. Andrikopoulos to Prof. O’Dea similar to how Pringle may have referred to Lind’s work?
History is indeed repeated by those who do not heed its lessons. If O’Dea is Lind, and Andrikopoulos is Pringle. One speculates who will be the Gilbert Blane who now shows the leadership to bring change and when?
Whether a low-carb paleo diet is 80% fat as in the mouse study or low-fat high protein as in O’Dea’s work, the ADS cannot ignore the low-carb issue any longer. People are getting sicker and dying waiting for innovation. Chronic disease in Aboriginal health is a national shame. It is time for change.
In my next post, I will examine how other indigenous people and groups are tackling their diabesity challenge at the grass roots.
Aboriginal and Torres Strait Islanders to should use caution viewing this post, as it contains images of dead persons. Nothing in this post should be taken as criticising or diminishing the efforts of the Nyungar or Aboriginal and Torres Strait Islander communities in pursuing their health or be construed as criticism of them for an unfortunate situation. The Nyungar have a deep and rich oral culture of which I am not a part. Therefore, I hope to be excused for any error due to the interpretation of things via the written words of mainly white historians. It is worth the risk to be wrong because this issue deserves highlighting and, as always, my comments are open to people to improve the information on this blog.
In my last post, I talked about the phenomenal success of the ketogenic diet in Nigeria where hundreds of thousands of Nigerians were using a Facebook group to solve their obesity, diabetes and PCOS health problems with a ketogenic diet. Then I saw an article on Siberian health problems from carbohydrate consumption and other lifestyle change in Russia. It got me to thinking, how are Aboriginal and Torres Strait Island Australians faring?
Indigenous peoples in other places like the Arctic and the Pacific Islands experience similar problems with obesity and diabetes. This was blamed on ‘thrifty genetics’ that predisposes them to weight gain.
While the existence of a thrifty gene is now disputed, the common thread is that their hunter-gatherer lifestyle has changed to a Western diet. As concluded from this study, that change results in health problems linked to insulin resistance. The fat deposition is very noticeable in aboriginal people. They tend to put on weight around the middle yet can remain quite lean elsewhere, and this is backed up by the cited study.
There is a predominantly central pattern of fat deposition in both men and women, which is associated with greater insulin resistance and cardiovascular risk than is peripheral fat deposition.
Past Research into Diet
Prof. Kerin O’Dea undertook pioneering work into traditional aboriginal diets, obesity, diabetes and heart disease. In her study from 1988, it was noted that even in underweight subjects still adhering to a more traditional way of life; there was higher fasting insulin and elevated triglycerides (signs of insulin resistance) even though their diet was low fat and comprised of lean meat.
In a book chapter from 1988 “The hunter-gatherer lifestyle of Australian Aborigines: implications for health.” Prof. O’Dea looked precisely at what we could learn from a ‘Paleo’ type diet of aborigines. In summary:
Aboriginals become obese and develop diabetes (along with high blood pressure and heart disease) when they stop eating traditional food.
Before European contact, they were lean and physically fit, and there was no evidence of chronic disease. They were ‘underweight’ with low BMI (13.4 to 19.8 kg/m²) without having signs of malnutrition.
There was a lack of literature and nutritional data on an entirely traditional diet, and so she studied people living mostly traditionally.
One group she studied had “a traditionally oriented diet” with a BMI of ~17kg/m² and exhibited low fasting glucose (3.8±0.4 mmol/L) but still showed other diagnostic signs of insulin resistance.
Referred to her previous seven-week study of a traditionally oriented diet (about 1200 calories). It had two-thirds of calories from meat, 13% from fat, 54% from protein and 33% from carbohydrates when the group were inland where tubers and honey were more plentiful. The carbohydrate quantity dropped to a level estimated at less than 5% when on the coast with protein at about 80% and fat at about 20%. The trial showed a normalisation or improvement of the metabolic factors associated with diabetes.
She concluded that a traditional aboriginal (Paleo) diet could reduce primary diabetes and cardiovascular risk factors in the general population but noted it was unlikely to be popular with nutritionists.
This type of diet is also unusually rich in animal protein and high in cholesterol- characteristics not generally favoured by nutritionists in making recommendations for better health.
Prof. O’Dea performed other ground-breaking research regarding diet, diabetes and Australian aboriginals. These included:
A 1980 three-month cross-over study that compared an aboriginal urban diet and traditionally oriented diet (50% protein, <20% carbohydrates, >30% fat) with a Caucasian control group that showed aboriginal people exhibit a stronger insulin response to glucose than Caucasians which was less pronounced after a traditional diet. This was likely to be a major factor in their predisposition to diabetes.
A study in 1982 on the effect of a high protein, seafood based, very low carbohydrate ketogenic diet for two week period. This showed a significant but small improvement. Most other trials of ketogenic diets have proceeded for longer periods as two weeks is about the time required for initial ‘fat adaptation’. It can be wondered what might have been the result had this trial been longer.
My armchair research is not as ground-breaking, but I do want to add. I decided that I would like to focus this blog on one particular group. The Nyungar (or Noongar) whose lands I dwell upon in South Western Australia. Why? The Nyungar were lean and healthy eating a traditional diet until relatively recently, and much of that diet is well recorded.
It is unknown exactly when the Nyungar came to these lands, but there is evidence dating to at least 30,000 years- or greater than 1,500 generations ago. History records that Europeans did not first settle here until 1826. Along with European settlement came new foodstuffs, disease and farming practices previously unknown to the Nyungar. Flour became especially attractive to them as they had nothing as starchy in their traditional diet. Some of the trouble with settlers was for stealing flour however despite new found foods, the traditional way of eating is said to have existed until the 1960s. Allowing some leeway, it was only three to five generations ago that the Nyungar changed their diet.
Many things changed with the coming of settlers, but I will focus on their food. It is common sense to do so as obesity is roughly 80% metabolism and diet and only 20% exercise and other lifestyle factors. The Nyungar did not run marathons for fun. Like other hunter-gatherers, their activity was low level for long periods and aimed at surviving. If you doubt that common sense, remember that it takes a 6.8km run to burn off a serve of coca cola and takes little effort to drink a few serves. I do not know why people confound themselves with other factors and think that we are obese because people just aren’t moving as they used to. It is a factor, but you cannot outrun a bad diet- contrary to the favoured myth of the fitness industry.
Nyungar Diet Today
So what was their diet like then and what is it like now? Some of the information I am about to present comes from this paper from 2010. It suggests that the current diet is high in fat, sugar, fast food and carbohydrates and that it is given to infants at an early age.
The majority of infants had received ‘fast foods’ by 12 months of age with 56.2% had been given coca cola, 68% lemonade and 78% fried chips.
Unsurprisingly, many are on the same poor Western diet that causes diabesity all around the world. The same one that results from giving advice to the populous to minimise salt, fat, sugar, avoid saturated fat and to eat 45 to 65% of dietary intake from carbs (Australian Dietary Guidelines) and the food industry adjusts its products to match. The diet exacerbated by the fast food industry with its fattening mix of carbohydrates and polyunsaturated seed oils.
What was their diet? Well, the account of foods is quite detailed in this paper too. It was a meat based diet rich in meat, offal, but low in green vegetables with some tubers with limited grains, fruit and sugars. The effect of that diet is apparent below.
Respectfully, I have not put any pictures here of today’s Aboriginals and Torres Strait Islanders following (as best as they can) the Australian Dietary Guidelines but you can do your own google search. You are likely to find that, along with all Australians, people are not as lean. It is important to remember however that research showed that even lean Aboriginal and Torres Strait Islanders were predisposed to diabetes.
I think it is important that a reader gets some context of the ‘bush tucker’ food available here- especially the carbohydrates. The exceptional skill that the Nyungar had to live on this land is hard to appreciate unless you have spent time here. We do not have natural forests of edible nut trees with an undergrowth of berries. There was no farming, and everything was taken in season leaving enough to replenish naturally. Surviving on meat and fish here is one thing, determining the edible plants among the majority that are toxic belongs to Nyungar knowledge won over millennia that is foreign to me. Let us look more closely at the carbohydrates in their diet. These were said to be from the zamia palm, seeds and nuts (primarily wattle seed), fruits, nectar, honey and tubers.
Sugars: Nectar, Honey and Fruits
Nectar from plants like the Banksia was seasonal at the flowering time. The nectar would obviously form a seasonal treat or snack in their diet- much like when Europeans suck on a honeysuckle.
There was no organised cultivation or production of snack products. As you might imagine too, just like these available for all Australians at my local supermarket, such snack treats would not form the mainstay of their diet.
Honey is a product of the concentration of nectar by bees. Unlike the European bees that arrived with settlers, most Southwest Australian bees are solitary and small. You just don’t get the same prodigious quantities of honey from them. Australia’s honey producing stingless native ‘sugarbag’ bees are not native to South Western Australia.
The fruit the Nyungar ate is typified by the native peach or ‘Quandong’. It is the size of an oversized grape and has limited meat. In fact, the ones in this picture are quite luscious compared to ones I have found in the wild. The ones I have seen have very thin flesh and a large nut with an oily kernel eaten roasted. It is a bit like a macadamia with a root beer flavour.
The Quandong has a short season of about a month over Summer in each locale ripening progressively from North to South in range over four months. It is also a small parasitic tree depending on specific compatible host trees, so both the fruit and the tree are not plentiful. The quandong is high in vitamin C but not overly sweet. If you can gather a sufficient quantity (an undertaking of some effort) and then combine with sugar, it makes a pleasant jam. Eaten fresh, the Nyungar would have had a tart treat.
While sugars were undoubtedly sought after, you would defy credibility if you were to maintain that the traditional Nyungar diet had any substantial sugar. It is recorded that the Nyungar collected nectar mixed with water for a sweet drink and also fermented it into an alcoholic drink (called Gep). Without bees to do the work, you can be assured that even when such seasonal pursuits were possible, they were well below the WHO stretch target of 5% of calories from sugar. You can be fairly sure that due to local availability and seasonality, most days would have no sugar intake at all.
Starches: Wattle, Tubers and Zamia
Wattle seed was probably the dominant seed that was eaten. In season it was ground and made into cakes cooked on an open fire and qualifies as the primary Nyungar grain. It would have been typical of the seeds that the Nyungar ate. Nutritionally, it was very high fibre (54%), and with a net carbohydrate content of 10.5%, 20% protein and about 6% fat, it is a very low carbohydrate grain compared to wheat (~70% carbohydrate).
Tubers were the last and probably most significant of the starches, and the Nyungar diet had a varied number. While I can find no nutritional analysis for these plants, it is important to remember that they were opportunistically collected, seasonal and never farmed or selected to improve the size and nutritional content. It is also a factor that tuberous plants tend to be found inland in the forests, and not on the coast.
Zamia: Carbohydrates or Fat?
Unlike other groups in Australia, the zamia palm is said not to have been eaten by the Nyungar for its more starchy seed, but instead for the poisonous oily macrocarpam which was specially treated to make it safe to eat. Contrary to what may have been assumed, to the Nyungar this was valued as a fat and not a carbohydrate source- much like the oil palms of the tropics.
Nyungars were not Vegans
The major part of the Nyungar diet, as written in many sources, was animals, eggs, birds, fish and grubs. As previously linked:
Traditional foods from this region varied but included emu, kangaroo, possum, goanna, fresh water crustaceans (maron and gilgies), bardi grubs from under the bark of eucalyptus trees or in the roots of mallee trees, wild duck, mallee hen eggs taken from the mound where multiple eggs were found and fish for people who lived on the coast permanently or in different seasons. Everything edible on an animal carcass was consumed, including organs such as the liver, kidney, brain and intestines.
It is evident through their preference for eating the oily zamia palm and other accounts of meat eating that they did seek fat although it was also not a high-fat diet. Fat would have been mostly from animal sources, and most wild sources from meat are not as high in fat as the domesticated ones that we now eat.
A Paleo Diet?
Putting this diet into modern terms, it would be pretty close to what people call a ‘Paleo Diet’. No dairy, but with eggs, meat and fish as available with limited vegetable content as could be foraged. Looking at the descriptions of Prof. O’Dea’s work and the descriptions above, most Nyungar would probably be on a high protein (say 75%) low fat (say 15%) and low carbohydrate (say 10%) diet with inland Nyungar probably eating more tubers for some more carbohydrates.
The actual composition would be subject to the seasonal and local availability of the carbohydrate sources like tubers; it would have been at times, a ketogenic diet- particularly if the hunt and forage were insufficient.
With so few carbohydrate and fat rich foods, there is no doubt that the Nyungar would have prized fat and carbohydrate foods as high energy sources. This is likely to be why they took the time and trouble to detoxify oily zamia palm fruits.
The Cause is Apparent
We have looked at some of the past research and taken a look at the likely composition of the Nyungar diet. It should be fairly obvious why the Nyungar would suffer from insulin resistance, obesity and diabetes when fed a Western diet. Even if you disregard the similar opportunistic diet that they ate while migrating to Southwest Australia they have had more than 1,500 generations to adapt to the low carbohydrate, low-fat food in their country. We have given them three to five generations to adjust to a high carbohydrate, high-fat Western diet. The effect of our dietary advice has tripled obesity since the 1970s for all Australia. It even gives us the diabetes epidemic that Australia now faces. No wonder the Nyungar have been so severely affected by it.
I am of Northern European descent. My ancestors have had over one hundred generations to adapt to a higher carbohydrate diet made possible through agriculture, but even that is not long enough. No wonder I developed diabetes in my forties while some Nyungar get it in their twenties. Doesn’t that make perfect sense?
The Australian Dietary Guidelines
Even if the diet that Australians ate was exactly to the Australian Dietary Guidelines (essentially low-fat with 45 to 65% of energy from carbohydrates with multiple meals spread throughout the day), it still is far from their traditional diet of one main meal, low in carbohydrates, after the hunting and foraging were completed.
Now we hit the great conceit. You see with all of our science and technology we have worked out that the ‘perfect’ diet for Australian humanity is expressed in the Australian Dietary Guidelines. The Nyungar and other groups should eat our perfect diet born of science because to do otherwise would be to deny them health. It would be discriminatory to have them follow a different diet.
If I were to espouse their original low-carb, low-fat, high protein diet, people would say: “Yes but in their primitive way of life they died young”. To that, I would say: “That is why we have modern medicine including antibiotics, sterile surgery, vaccinations, pre and ante-natal care, effective drug therapies and more”. Further, as obesity and diabetes were completely unheard of on their traditional diet, no-one would likely die of diabetic complications, suffer diabetic induced cardiovascular disease, diabetic blindness, kidney failure and amputation. Isn’t that what we are seeking to fix?
No one is suggesting that the Nyungar must go back exactly to their traditional diet and lifestyle. There is no reason though why healthy eating of similar composition to their traditional diet cannot be recommended. It is not, though. In fact, the diet that I am on is denied as an option for the Nyungar by Diabetes Australia and Diabetes WA. My diabetes effective low carb healthy fat diet would be pretty close to their traditional diet. It is safe, maintainable and gives me normal blood glucose that means I will avoid diabetic complications.
Most importantly, it has reversed my diabetes.
Calling it Out
No Facebook groups are helping the Nyungar, or other groups achieve low carb weight loss and curing their diabetes as the Nigerian ladies have achieved through self-organisation. Our First Australians are depending on not-for-profits who are failing them.
Advice from Diabetes Australia for Aboriginal and Torres Strait Islander’s with diabetes may include the call to eat more bush tucker, but it is otherwise much the same as for all Australians. In particular, it does not suggest limiting, total carbohydrate. The CSIRO has recently proven this to be effective, and actually, Prof. O’Dea’s studies also showed its efficacy some forty years ago. It seems unfortunate that it was not a favoured message of the nutritionists either now or then.
This issue has to be called out, and so I am doing so. To continue pushing the Australian Dietary Guidelines for people with diabetes, and in particular for the First Australians like the Nyungar, is tantamount to Australian Dietary Genocide. It is making us all, white fella and black fella, very very sick.
In Australia, our fat-cat bureaucrats, egghead scientists, over-lobbied politicians, salivating not-for-profit CEOs, conflicted dietitians organisations, greedy pharmaceutical companies and over sweetened food industry CEOs are debating obesity strategy and sugar or health taxes. The government has already dispensed a National Diabetes Strategy that this motley crew put together that wouldn’t even make it onto the fiction best seller’s list, let alone solve the problem, as it fails to contemplate changing dietary recommendations as solutions. Taxing us to tackle obesity? Unfortunately, they take themselves too seriously.
As a health consumer, what do you think? Before you answer, I’ll tell you that you should simply not give a damn (or insert your favourite four letter word here). Sorry for the language but when you realise that other than your statistic, it is not about you. Not one of these is truly advocating for you with your chronic obesity or diabetes. It is all to do with their interests like funding for their members and organisations, research buckets of money or profits. They have forgotten you and the experts are dead. After all, if they actually fix your chronic diabetes or obesity, what would they do with themselves?
Meanwhile, In Nigeria…
A quiet revolution is underway. Let us look at something that really should matter to you much more than the business plans and career advancement of all those types above.
Nigeria’s population is pushing 190 million. The traditional diet is quite high in carbohydrates with palm oil and other fats, and it used to be a sign of affluence to be chubby- but not anymore. It has upwards of five percent of those people with diabetes, many more pre-diabetic and far too many are obese. The obesity rate climbed eight times from 1.3% in 1974 to 10.3% in 2014. Fertility is impacted by PCOS. Yessiree, Nigeria has an insulin resistance problem.
Is Nigeria Lacking Dietetic Advice?
How can this be? Surely most people are not so affluent as to be obese? Nigerians probably have a good deal of plant-based diet as meat is more expensive. They have national dietary guidelines that are just as good as ours. Those guidelines recommend that Nigerians have a rich carbohydrate diet, limit fat and avoid saturated fat. Those guidelines say they should have lots of fruits and vegetables and not eat too much red meat. They have a dietitians association that gives them the same advice as everyone else in the world gets. Perhaps Nigerian Dietitians have the same problem as the DAA in that they have the same fantastic dietary guidelines, but no one follows them. Strangely this is an epic fail in every country, but we keep on doing the same thing and hearing the same excuses.
Perhaps it is all the new sedentary jobs in Nigeria that have caused these health problems? The Internet penetration is at about 52%- approximately 97 million people and about 16 million of those are on Facebook. Of course, to think of Nigeria as a poor, backwards country is not only insulting, it is untrue. There is one key technology statistic they lead in. I noticed that they even beat the United States.
If you search for the term ‘ketogenic’ on Google Trends, you see that Nigeria beats all other places in the world. “It must be some mistake,” you say? It is not. While our societies are nauseatingly debating sugar taxes, how to prevent obesity, coming up with ineffective national diabetes strategies and suppressing low carb for greed under a thin veneer of philanthropy, the ladies of Nigeria are transforming their health and the health of their country.
Now the low-carb deniers are probably going to suggest some tin-foil hat conspiracy. Maybe Prof. Tim Noakes has been commuting North every week spreading his vile message? No. It is a grass roots revolution.
In Nigeria, the low-carb diet is best known under the term ‘ketogenic’ diet, and so it has slipped under the radar compared to terms like Paleo, LCHF and Banting.
The Google trend search also shows that adoption has been extremely rapid. From a near standing start, it accelerated in about August of last year. It had the usual January bump that we see in diet trends. What is driving this? No surprises folks. It is because it works and the ladies know it.
One of the largest groups on Facebook is called “Ketogenic Lifestyle”. It started posting its ketogenic information in August of last year when the surge happened. It has about 316,000 members and has grown very fast. What may surprise you is that this group caters to provide support for Nigerian low-carbers. Almost all of the members are Nigerian, and the majority are women. How the three admins manage a Facebook group with over 300,000 people is probably worthy of a separate post (and a gold medal)!
This group was started by Joy Aghogho whom some of the members refer to as “Aunty Joy”. Joy is exactly what they feel every time a sister, infertile in the past from PCOS, announces their pregnancy. The posts are a procession of advice and information and then beautiful ladies. Beautiful and large before, beautiful and healthier after keto. They know the keto diet is a therapeutic diet that can counter the health scourges of their country (diabesity) as well as PCOS and epilepsy. There is not a dietitian in sight. These are ketogenically educated ladies, and they seem to know it better than most Australian APDs!
Let us just run some numbers for the bureaucrats and CEOs who may happen to come across this health consumer’s blog. 316,000 Nigerian Facebook users can actually be doubled when you consider that their partners are probably eating keto too. That is four percent of the Facebook user population. Given that societies like Nigeria have very dynamic and active personal networks radiating from each user, that figure may well be a good proxy for the penetration of the ketogenic diet into Nigeria itself. This figure is significant as the official rate of diabetes in Nigeria is 5%, and the ketogenic diet normalises and reverses type 2 diabetes and offers type 1s normal blood glucose. There is likely to be a great crossover between the obese and diabetic population (10.3% and 5%) and the ketogenic diet population.
So here are some questions and implications for various people from the ketogenic health explosion in Nigeria.
For Government Health Ministers and Health Bureaucrats:
Will Nigeria beat diabesity before your country even considers the right move? It looks like you need to get away from the noisy lobbyists and interest groups and investigate what is happening for health in our own Facebook communities.
For Pharma CEOs:
Nigeria is probably not even a blip on your sales figures, but you now have a duty to your shareholders to inform them of the risk from other country populations adopting low carb- particularly at the rate of growth seen in Nigeria.
For Pharma Shareholders:
Along with the Credit Suisse report, time to reassess your long-term investment unless your CEO has communicated a clear strategy to manage dietary change to low carb.
For Diabetes Not-for-profits:
Are you really committed to innovation to improve the lives of people with diabetes? If not then find another job.
For Food and Drink Industry CEOs:
Time to stop resisting with marketing that will damage your future brand. Consider what your products will be in a low carb future and like pharma executives- consider your projections carefully.
For Food and Drink Company Shareholders:
Along with the Credit Suisse report, time to reassess your long-term investment unless your CEO has communicated a clear strategy.
For Dietitians and their Not-for-profits:
Even if you STILL think this is a diet fad, shame on you to force health consumers to fix themselves via Facebook. Ignoring this health revolution is making your irrelevant.
For the higher carb chronic disease sufferer:
Time to try what these smart Nigerian ladies know.
For the researcher:
Plenty of epidemiological data here about the mass-effect of ketogenic diets on weight loss, POCS, Diabetes and health. Time to pull out your head and head to Abuja or talk nicely to Joy.
For the existing low-carber:
See what the low carb community can do.
Keep calm and keto on with our Nigerian sisters!
We have accepted that your regular networking channels for health may offer some relief, but they won’t offer you anything approaching a cure. For example, If you are looking to reduce your dependency on medications? Avoid any ‘lifestyle information’ that has the seal of approval from pharmaceutical companies.
If you have diabetes and might try to reduce your carbohydrate, Diabetes Australia tells you to eat to the Australian Dietary Guidelines like the rest of the population (45 to 65% of calories from carbohydrates) when it is common sense that pharmaceutical use rises the more carbohydrates you eat. Eli Lilley supports the awards for diabetes educators in Australia and so is it a curious coincidence that their educator gave advice to me to eat more carbs?
We saw that Sanofi has a website to send you to chemists that they have educated to use their product. Dietitians Associations have breakfast manufacturers as partners. They continually tell you not to skip breakfast and to eat whole grains like it is a religion. Despite this, in Australia, your doctor will refer you to dietitians, and the government pays your fee to see them!
You don’t need to chain yourself completely to this mess. Just accept that it is full of possible conflicts and corporate marketing and interests. You would go crazy trying to get to the truth while understanding this is just the chronic health industry that you want to leave behind.
Our quest to get some low carbohydrate dietetic advice looks bleak. Can it really be hard and dangerous to do it yourself? Worse than any danger from a short-term dietary change would be to do it incorrectly, not see any benefit and miss out on future good health.
So the big hint that came out of our PCOS analysis was that we saw in the Facebook comments on the DAA press release that there were Facebook comments from people who were doing low carb and who did not agree with the press release.
However, before we go there it is critical to understand the Macrofour principle:
The experts are dead!
If you don’t get that, then go back and re-read my blog from the beginning. Without that understanding, you may be seduced by all of the rhetoric of the people who have not walked a mile in your shoes. When they say ‘build your health team’ it really means ‘learn how to depend on us’. When they say ‘learn how to manage your disease’, it means ‘learn how to get comfortable with our products and services for life’. There is no conspiracy here. It is all just good business. After all:
There is not profit in healthy people and there is no profit in dead people. The chronically sick are the most profitable.
So as I said before, take the best that system can offer to buy you time, but do not accept that it is your best solution.
Finding the Right Experts
When I say the experts are dead, it doesn’t mean that all experts are useless and all expert knowledge is useless. Quite the contrary. The solution to your problem is likely to be underpinned by science and experts. They are just not the experts that would have you manage your chronic condition until you die. Equally, you need to avoid the snake oil salesmen who dishonestly offer you a product or cure. It seems a difficult road to navigate but there is a solution.
The Internet and Facebook are part of your ‘Health Team’
Social media is social networking. Social media health groups are health networking. If a better solution is being practised somewhere in the world, then somewhere on the internet is a forum or group that is exercising it and sharing the knowledge. You just need to find it.
Start by talking to people. Were they like you? What have they done? What worked and what didn’t work. Remember, your N=1 is not their N=1; but it might be N=2!
Back to getting dietetics advice. A recent change in Australia is the formation of a group of independent dietitians. They were set up to form a register of consultant dietitians who had no other conflicting commercial interests. There are similar organisations of dietitians through Facebook groups. In the very next days, dietitian Matthew O’Neill is running an online seminar on low carb aimed at reconciling mainstream dietetics advice. They may still not be the experts you are looking for, but the reason that I know of these options is through social networking on Facebook, Twitter and the Internet.
In a similar fashion, we saw that Dietitian Franziska Spritzler favours a low-carb approach for PCOS and other ailments. Feng-Yuan Liu had an article written about her on Foodmed.net and Metro Dietetics where she works, understands the therapeutic low carb approach and has better information (based on my analysis) than the DAA for PCOS.
If you have diabetes and need intensive help, then Jennifer Elliott has a program that can be undertaken with doctor support. While being deregistered from the DAA might seem a bad thing, in the opinion of the low carb community on Facebook, she is very competent and knows her stuff. Especially when we have examined the DAA’s poor PCOS press release, it may be that being deregistered from the DAA is actually a badge of competence and innovation.
Of course, if you are in Tasmania, you could probably not go past the Nutrition for Life Team. Started by ‘silenced’ orthopaedic surgeon, Gary Fettke and run by his wife, Belinda. It seems that being deregistered, banned or silenced is almost a pre-requisite for credibility. We may look at that more closely in the future.
The point is that I know about these dietetic resources from networking in the low-carb community.
This is not exhaustive. There are these and many other resources. You can discern the worth of these by using your extended health team and the wisdom of crowds. You need to learn from people who have walked a mile in your shoes and hopefully have achieved a better outcome.
In a coming post, I will collate a list of Facebook groups and other resources for people to examine. These may have dated by the time you read this blog, but others will have taken their place. You will need to find them.
If you have low carb services or run a facebook group or other forum and may not be represented in the channels I may use or want to check that you are included, then please contact me. To be perfectly clear I do not accept payment for mention in my posts and any inclusion is at my complete discretion after having regard for your standing in the low carb community.
If you have read my previous posts, you may have decided to trial a Very Low Carb Ketogenic Diet. In my last post, I thought I would start to give you some practical advice to achieve that.
Before we start looking at that, I would like to state the Macro Four principles of chronic disease management.
The Experts are Dead!
The experts do not care about N=1 but you do!
And now I introduce the third and probably the most important one.
Find people who have walked a mile in your shoes.
Why do I say this? Well, suppose that there is a cure out there and that people have discovered it. Let us say that cure is effective and people have been quietly taking benefit from it for a while. Let us say that cure has not been given the official anointment in your country or local area but has been widely practised in another- officially or unofficially.
The official channels of your health system may not offer you that cure for decades. However, there would exist a pocket of people quietly benefitting from that cure but because they are probably ‘unofficial’ you may not hear of it. You could perhaps find a group of fellow sufferers and talk to them. Alternatively, lets say you have decided to try a ketogenic diet, find a large group and ask- Has anyone found this has helped condition X? You have little to lose from this approach. It is just talking to people.
Health networking is your surest way to find that is to find a group of fellow sufferers and talk to them.
Before we talk about where you may find those people to get some advice, let us talk about the common places that you won’t find those people. After all, your time without relief is time suffering. You want to spot the time wasters.
You are unlikely to find someone with a advice for a better solution at a self-help group educated by your local, not for profit organisation for your chronic condition. That is because those ‘experts are dead’ and they will offer you conventional therapies that mean that you will remain chronically sick. Their advice may be complementary to a path you choose to take, or they may even discourage you from an alternate solution.
Why would they do that? The reasons are many and varied.
They follow the standard treatment.
You probably won’t find ‘cured’ people there.
Their mission statement probably perpetuates the ‘learned helplessness‘ that you want to leave behind.
That standard treatment might be as preferred by outside interests like the pharmaceutical or food industries.
If that seems strange to you it isn’t. Let me state that I do not believe in ‘conspiracy theories’. On the other hand, there is almost always an explanation for human behaviour however, nonsensical or odd. Most of the time it can be understood by looking at the flow of money.
Earlier, I focussed on PCOS because I expect that by the time many of you read this blog, the example of type 2 diabetes will seem so obvious in retrospect. Then again, maybe not!
Following the Standard Treatment
Nonetheless, here is my experience as someone with type 2 diabetes. I was diagnosed with type 2 diabetes about five years ago. I duly followed what Diabetes Australia recommended. Without repeating some of my earlier blogs, it was a disaster. My health deteriorated.
After some three months on a VLCKD and with greatly normalised blood glucose, I rang up their help line to see what advice they would give. Sure enough, the CREDENTIALED DIABETES EDUCATOR told me to eat more carbohydrates. That would have been a disaster.
You Won’t Find ‘Cured’ People
Me ringing up was an oddity. I am just the kind of contrarian individual who would do that. I have toyed with the idea of going to one of the self-help groups to spread the word but who wants an ugly scene with the group expert? So once someone has found a solution, they won’t frequent those social circles. You need to find the people who have the ‘cure’ and talk with them!
They Mean Well but Teach Learned Helplessness
Chronic disease charities do say they want to end their illness. In the end, they accept donations for a mission and are a corporation in their own right. They probably honestly want to give you help and advice. Take it. Check it. Then discard any notion that is the end of it. Avoid any learned helplessness that may come from depending upon them and seek to do better.
The Influence of Industry
Now we get onto the thorny question of the influence of industry on not-for-profit entities. There are no conspiracy theories on this blog. It is normal corporate behaviour to protect and maximise a revenue stream for shareholders by spending budget to create profits. That is just business. When was the last time you heard a CEO say: “We think there is a better solution than our product. Please use that solution.”? Primarily for the health and pharmaceutical industries, the expenditure to protect a revenue stream comes under the ‘marketing budget’ and the ‘Research and Development’ budget.
Not-for-profit’s too are still corporations. They do not have to look after your health although they may state that they do. It would be rare for a government to legislate that. If a not-for-profit says that they are there to look after your health, it is (in most countries I know of) pure self-regulation. They are more likely to take care of their member’s interests, but they are not even obliged to do that!
Will Your Local Pharmacy (Chemist/ Drug Store) Provide Advice?
You might bump into someone at your local chemist who has a solution but will they talk to you to tell you? So here is a story. I had just gone to the chemist to buy some glucose testing strips after I had ceased my diabetes medication due to going low carb. There was a lady about 70 years old. She was filling her prescription for the diabetes drugs that I had just ceased. I almost spoke to her to tell her that there was another way but then realised that she would probably think I was crazy. I was not her doctor or dietitian. Now I am no shrinking violet, so your chances are not good for that to happen. On the other hand, if you are that person who is told this by some ‘crazy’, maybe you should give it some consideration?
But there is another reason your chemist may not provide advice. I give you a ‘wonderful’ website to manage your diabetes if you are Australian. Now you have to look hard to the copyright message at the bottom to see that this site is owned by Sanofi- a pharmaceutical company. It is a standard commercial behaviour to protect revenue streams so, while their advice is probably valid to help you manage your diabetes through their medicines, don’t expect to find any therapies to get you off them on this website. Want proof? Have a look for any mention that, with diabetes, you should avoid sugar or reduce carbohydrates.
Also, do not expect to get such advice at the chemists that they point you to. They tell you that they have educated these pharmacists. Education is usually part the marketing budget. So if you want advice on how to manage a lifetime of medications, then those chemists and their pharmaceutical company education will suit you well. Alternatively, if your desire is to eliminate or reduce your dependency on medicines, I would now be asking my pharmacist if they have any pharmaceutical company training in my medication and be aware that may cause bias. I do not know what else the pharmacist receives in this arrangement (if anything), but maybe one of them or Sanofi could tell us in the comments below. Still, that website could be useful to tell you which chemists to avoid.
Does this shock you? Maybe mildly? Well, get used to it health consumers with some dollars to spend. This is normal commercial behaviour. In this blog, we will examine many other examples as we find out how we might find that elusive cure for our chronic disease.
Next, we will consider whether you may get a solution from Dietitians.
So the experts have told you that you have a chronic or incurable condition? Maybe you have diabetes, metabolic syndrome or obesity or just cannot lose weight? Possibly you are someone who wants to understand medical innovation? Perhaps you were caught by the title and wanted to know how the experts died, who killed them and why?
Let us start to make some sense of an ‘unsatisfactory predicament’.
What is a chronic disease? It is a medical problem that doesn’t go away on its own or with finite treatment for complete cure. It may have a symptom or multiple symptoms. Those symptoms may get better or worse in severity over time. You may be taking medicine to manage the condition. It usually isn’t communicable to others and usually isn’t ‘believed’ to be caused by yeast, parasite, virus or bacteria. I say ‘believed’ because it may be that it is and yet the experts do not acknowledge it. It could also be that some organism is opportunistic and remains present or recurs because of low immunity and there is an underlying reason (the root cause).
Our Medical Systems
What happens with chronic disease in our medical system? You see the doctor, and the doctor diagnoses you or refers you to s a specialist who diagnoses you. You take your medicine- which helps- but it doesn’t get better. It is a managed condition. Eventually, you accept this. The condition is chronic or terminal, and you learn to ‘live’ with it. The problems continue because you have not addressed the ‘root cause’.
Alternatively, you hop from doctor to doctor hoping for a later opinion to give you a cure. (However, there is a problem with this which we will understand better later). Maybe then after a while, you accept it and learn to ‘live’ with it. You may manage the condition for the rest of your life.
Alternatively, you get secondary effects, the condition worsens, and you have unwanted complications like blindness, amputation and kidney failure. You may have more radical treatment like surgery or and eventually, it is terminal. That would be typical for diabetes for example. If it were cancer, say prostate or breast cancer, it could be more aggressive, but the outcome is still the same- a continued decline.
Adding complication, you may have multiple symptoms. You may get depression (or this may, in fact, be your primary problem), hypertension, high cholesterol or any number of other problems. Pretty soon you can be on a cocktail of medicines- polypharmacy- and you need them long term. In a further complication, your livelihood, work, family, and social life may be adversely affected.
Example of Obesity
If you want a simple example that fits many of us, then I give you- obesity. Well, I don’t literally give it to you because many of us already have this chronic condition. Is it a disease, symptom, condition, malady or just a fact of life? Obesity could be any of the above. It can make us depressed or at least unhappy, and it often gets progressively worse. We diet and lose weight yet it most often comes back. We follow the experts to ‘move more and eat less’ but despite weight loss industry being worth billions of dollars no one seems to know the root cause. The best they can say is:”It is complicated. It is multi-factorial.”. Obesity is a chronic condition, and the experts are dead.
Whether your problem is obesity, diabetes or something more immediately serious, I would hope for you is that there is an alternative. There is a solution out there to your medical problem. Someone has beaten the incurable problem. Someone is treating the problem successfully and perhaps unconventionally. There is perhaps new research that you could try or a study in which you could be involved. How would you find that?
Type 2 Diabetes and Obesity Solved!
Well if your problem is obesity or type 2 diabetes, then there almost certainly is such a solution. If you have type 1 diabetes, there is also the chance for marked improvement. If you remember I said that you could learn by imitation? You certainly can for those (and related) conditions because the solution I have followed should also work for you.
At this point, medical people would be telling you that I am “peddling false hope”. You see they ‘know’. They are the experts and what is happening to you is what happens to all of their patients. If the best expertise, which they embody, cannot cure you- then everything else is just pseudoscience. I am understanding of that logic, and you also need to be. I would not want to get your hopes up. What I did may not work for you. The solution to your problem may not surface in your lifetime, or indeed it may be lost in time.
I can tell you that in my case it was true that I went through years of managing a chronic condition, that if I had the correct advice from the start, would never have progressed. In fact, as it occurs, my problem has reversed by addressing the root cause. I could have saved much heartache and damaged health. In my case, it would have mattered little if I went from expert to expert. The only solution that would have helped me was to understand that, for my problem, the experts were dead. When you accept that metaphor, you can open up the possibility that there is a better solution out there and find it for yourself.
That is not to say that the conventional wisdom is all wrong. What we need to do, while getting the best possible outcome from the conventional wisdom, is to explore the alternatives.
Take a Journey
If that prospect is something you would like to evaluate through my experience, or if you are a medical professional wanting to understand how to lift your innovation game, then this blog is for you.